I do not know diddly about the Stages of MS Chart, but I have some familiarity with The Expanded Disability Status Scale (EDSS). It was developed to keep track of MS patients and is also used for AMN. Well. At least it was for me. I do not expect that there are enough AMNers toContinue reading “Scoring Your Disability”
Category Archives: Uncategorized
What the heck does it mean to be disabled?
I expect that most people think that they have a pretty good idea of what it means to be disabled. I know that I did. I was singularly focused on my inability to walk and do things that I used to do. Thursday evening, I had the privilege of participating in a Halifax, Nova Scotia-basedContinue reading “What the heck does it mean to be disabled?”
Parenting Tips You Need to Work On Right Now
This stuff is key for everyone. Disability does not let you off the hook. Nope. You will come up short on some things- everyone does, disabled or not. Still, it is going to feel harder when you are dealing with your own limitations. Figure out what you can do, and do it well. Your kidsContinue reading “Parenting Tips You Need to Work On Right Now”
Mental Health Haven: 4 Ways To Create One In Your Home
It is fact that disability may lead to emotional instability. And if that is all that you get out of it, consider yourself fortunate. Where I see sometimes greater damage than that resulting from disability is what it does to a body’s sense of self. Yes, disability can do nasty stuff to the brain. ItContinue reading “Mental Health Haven: 4 Ways To Create One In Your Home”
To burn or to fade
Originally posted on Bill Pearse:
The flowers are wilted but give off some color still. The morning is damp, the first time in 50 days. You can hear the earth drink, the birds cry, the gutters trickle. All is still, a bough dips under the weight of it. Petals drop like tears, like party favors.…
Easy Backyard Access
I was in a bad spot. Before disability, I got great satisfaction from my yard. Keeping the grass trimmed, the trees pruned and the bird and squirrel bellies full. The wheel chair did not enhance the enjoyment, I tell you. I needed a solution. I built with my own two hands, from the comfort ofContinue reading “Easy Backyard Access”
Steps To Take To Improve Your Self-Worth
This importance of this self worth thing cannot and must not be understated. I get it, disability can mangle your self-image. So, maybe now you are well-positioned to do even BETTER things! Keep it straight, and thank you for sharing, Melinda!
Bored by Your Wheelchair? Looking for a more Practical Ride?
For those of you who are going to be visiting Bend, Oregon in the near future, I have the opportunity for you! Come take a free test ride on the coolest off road wheelchair (if you want to call it that) that I have ever seen. Sadly, I will not be making the trip, butContinue reading “Bored by Your Wheelchair? Looking for a more Practical Ride?”
Half Marathon in a Wheelchair
I have seen plenty of guys in races with handcycles and racing wheel chairs. I thought that I was the only dummy to try a race in a straight up ultralight chair like this dude is doing. They are going to make you sit through a pile of ads before you get to the video,Continue reading “Half Marathon in a Wheelchair”
Air Travel for the Disabled
Finally, efforts to make airline travel truly accessible for folks in wheelchairs. If I was the betting sort, I’d speculate that most people dependent on wheelchairs for mobility are apprehensive about traveling by air. And with good reason. It is difficult. While I do not have much trouble getting through the airport, cruising down theContinue reading “Air Travel for the Disabled”
Walking the Rails 