Latest from the Blog
Cerebral Adrenomyeloneuropathy
This one is not such a cheerful installment. I am aware that I promised that the content of this website would be optimistic and upbeat. Nonetheless, as we all know, the potential for cerebral involvement is part of the bargain. I do not plan to dwell on it, but it is a big deal forContinue reading “Cerebral Adrenomyeloneuropathy”
His Name is Ken D: He has AMN
This one was a bit tricky for me to write. If it hits anyone the wrong way, please know that it was not intentional. I have known Ken for the past several months through ALD connect. Please watch his story. Suffice it to say, if you are afflicted with AMN and do not know him,Continue reading “His Name is Ken D: He has AMN”
First Impulsivity after an Adrenomyeloneuropathy Diagnosis
It was the Friday before Mothers’ Day when Dr. Moser dropped the bomb. My body proved resilient, remaining virtually the same as it was the day before, the month before, really even 5 years before. Everything else, though, at least everything that I could see, was flipped on its head. This decapitation of my physicalContinue reading “First Impulsivity after an Adrenomyeloneuropathy Diagnosis”
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