Scoring Your Disability

I do not know diddly about the Stages of MS Chart, but I have some familiarity with The Expanded Disability Status Scale (EDSS). It was developed to keep track of MS patients and is also used for AMN. Well. At least it was for me. I do not expect that there are enough AMNers to make it worthwhile to develop its own instrument.

EDSS is kind of like golf: the lower your score, the better. That is not to say that you should be competing against each other.

It seems like I was a 2 for the longest time. Which for whatever reason, I was proud of. I really had no idea of where I fall on the spectrum these days. So, I had a look. I expect that I am a 7, and have been for many years. But maybe not a solid 7?

Not totally sure: that “no longer able to walk more than 5 meters (16 feet) even with aid” bit is way out of line. Not likely.

And there is no way I am going to ask for help getting in and out of the chair, so 7-1/2 seems an unneeded and unwanted stretch.

Maybe like 7-1/4?

So, if its ok with you all, seems I ought to try and stick around the 7.

Keep it straight. Brad

Published by bradleygillespie

I am just a guy with a disease called adrenomyeloneuropathy. I want other guys with the disease to see the good parts of disability. Not the gloom. Not the doom. Make sense?

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