Partnering to fight AMN together

First let me say, on behalf of everyone at SwanBio Therapeutics, how much we admire and respect the platform Brad has created here with his blog. The voices of people dealing with AMN are the ones that rise to the top when we make decisions. For readers who don’t know us, SwanBio is targeting diseasesContinue reading “Partnering to fight AMN together”

Genotypes, Phenotype, Whatotypes?

I expect every man with AMN knows full well how he got to where he is. We all know that while dad did his part proper on the Y, over on the X side, well, politely, mom shared a gimpy chromosome. Thus, the term, X-linked, as in the umbrella term, X-ALD. This, boys, is ourContinue reading “Genotypes, Phenotype, Whatotypes?”

Mi Historia con la AMN

Please excuse my translation. Giancarlo wanted it posted in English, also. I have tried– Brad It all started 5 years ago. I was 26 years old, I worked for a clinic and played sports, especially swimming. I lived a normal life like any child and young person. I was very outgoing and had many dreamsContinue reading “Mi Historia con la AMN”

Mi Historia con la AMN

Todo empezó hace 5 años tenia 26 años, trabajaba para una clínica y practicaba deporte Natación especialmente, viví una vida normal como cualquier niño y joven muy extrovertido y con muchos sueños por realizar empece a presentar síntomas en mis piernas a fatigarme cuando caminaba mucho empezaba a caminar mal y aveces me caía, esoContinue reading “Mi Historia con la AMN”

Am I done? Am I Resting? Something Else?

A strange thing happened to me yesterday. When I was a young man, freshly diagnosed, I was full of vinegar, keen to learn the science and seek out potential cures. Not snake oil, oh no. There plenty of these salespeople to be had. This was not it. I wanted science-based answers. Sadly, there really wasContinue reading “Am I done? Am I Resting? Something Else?”

Beginnings

On Friday February 19, 1965, General William Westmoreland was on the cover of Time Magazine. Closer to home, Ken and Joan Gillespie were in the process of welcoming their second son, Bradley Kent Gillespie into the world. That would be me. From what I am told, I was not the easiest baby. I seemed toContinue reading “Beginnings”

So, What it is really like to have AMN?

So, I know who I am, and what I feel. Of course, I do. So do you, maybe. Nonetheless, many of the things that happen to a body if you decide to test drive a new disease can be uncomfortable, scary and often, embarrassing. Not good, I tell you what. Over time, I gained acceptanceContinue reading “So, What it is really like to have AMN?”