Wanted: Conquest

Maybe it was because I was no good at regular stuff, but I always have had this real need to conquer something, anything big would do. Most likely something long, canoeing the length of the Mississippi? I became obsessed by the Appalachian Trail (AT): a single track, skipping along the mountaintops from Georgia to Maine,Continue reading “Wanted: Conquest”

Something to Consider

I love to enter road races in my wheelchair. It is part of what I do, to feel normal. I guess I have a bit of work ahead of me before I need to deal with the problems described in this article- I am consistently slow. https://fivethirtyeight.com/features/why-wheelchair-racers-outpace-olympic-distance-runners-but-not-sprinters/ I have a racing chair that some dudeContinue reading “Something to Consider”

Genotypes, Phenotype, Whatotypes?

I expect every man with AMN knows full well how he got to where he is. We all know that while dad did his part proper on the Y, over on the X side, well, politely, mom shared a gimpy chromosome. Thus, the term, X-linked, as in the umbrella term, X-ALD. This, boys, is ourContinue reading “Genotypes, Phenotype, Whatotypes?”

Mi Historia con la AMN

Please excuse my translation. Giancarlo wanted it posted in English, also. I have tried– Brad It all started 5 years ago. I was 26 years old, I worked for a clinic and played sports, especially swimming. I lived a normal life like any child and young person. I was very outgoing and had many dreamsContinue reading “Mi Historia con la AMN”

Very Happy to see New Views

Starting this enterprise does not come easy for me. I have carefully avoided the whole social media thing, and while I have occasionally thought about blogging, I had no idea how to go about that. I am not well equipped. It is slow going, but I am seeing progress as I pick up a bitContinue reading “Very Happy to see New Views”

Coming Up: Early Leanings of a Crippled Man

The foundations were poured and my underpinnings securely in place. With passing of time, that gimpy strip of DNA began to stake its claim, and make a name for itself….. With growth, comes progress. Such developments may come along in many ways. The mastery of a talent or skill, can be a beautiful thing. OrContinue reading “Coming Up: Early Leanings of a Crippled Man”

Right to Try?

‘Remember her as the badass she was.’ The first bit of the title caught my attention, as I expect that it was intended to do. I had a look. I like to stir the pot from time to time, this one delivered. Expanded Access always seemed like a good idea to me, I mean ifContinue reading “Right to Try?”