His Name is Ken D: He has AMN

This one was a bit tricky for me to write. If it hits anyone the wrong way, please know that it was not intentional.

I have known Ken for the past several months through ALD connect. Please watch his story.

Suffice it to say, if you are afflicted with AMN and do not know him, well, you should.

What I love about Ken is his constant upbeat personality. Anyone who has googled adrenomyeloneuropathy can attest to how easy it is to find all of the horrible aspects of this malady. It was this phenomenon that helped me to set my life expectancy for 6 months back in 1996. While, sadly, all of this horrible stuff does happen to some people, it did not come my way, and you, too, may be spared. If I had somehow met Ken way back then, maybe I could have avoided wasting all of the years that I spent paralyzed by fear.

We must never take this disease lightly, it can kill. Let us support those that need it with our love and (virtual) companionship. At the same time, no matter who you are, and where your station, please live the life that you have.

It is so refreshing to see that there are other possible paths that this disease may choose for us.

Thank you for sharing, Big K.

Keep it straight. Brad

Published by bradleygillespie

I am just a guy with a disease called adrenomyeloneuropathy. I want other guys with the disease to see the good parts of disability. Not the gloom. Not the doom. Make sense?

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